Frequently Asked Questions
Will giving a blood sample hurt?
Everyone’s pain tolerance is different, it will hurt
no more than having blood collected for any regular pathology
test.
What risks are involved?
As with any normal pathology sampling technique (collection
method) you may experience a little stiffness or you may bruise
slightly.
What is a control volunteer?
A person that is known not to be affected and who has no close
family members with a history of the condition being studied.
Their results are compared to people affected by a disease.
How do I know that my medical information
is safe and not passed on to a third party?
The Genomics Research Centre is governed by a very strict
code of ethics which is monitored by Griffith University Ethics
Committee. All of our research projects and every part of
the project from the consent forms, questionnaires, labeling,
storage of information and samples must be approved by and
is monitored by the GUEC.We also abide by the Australian National
Health and Medical Research guidelines (NHMRC), Good Clinical
Research Practice guidelines (GCRP), International Conference
of Harmonisiation (ICH), Good Clinical Practice guidelines
(GCP) and the Declaration of Helsinki. It is against all these
codes of practice to share personal identifying information
with other parties. One of the conditions that we are given
permission to conduct research at Griffith University by the
GUEC is that we de-identify all information and blood samples
when they arrive at the Centre.
I don’t have any of the conditions
that you are studying. Can I still be of any help?
Yes. With most studies that we do, we also do what is called
a comparison study. This is when we compare the results between
affected and non-affected people that we call controls.
What is a control?
A control is a person that has volunteered to participate
in our research that is known not to be affected by the
condition
being studied and also no family history of the condition.
Can you tell me what my blood group is?
No. Your sample will only be used in the research we are
conducting and not for any other testing that you have
not agreed to.
Will I get any results?
No. As we are investigating the genes involved in a particular
disease, we rely on the information from many hundreds
of
people to give a statistically significant result. Therefore
we are unable to give individual results. Only once a
diagnostic
test has been developed and a person is specifically tested
for that gene can individual results be determined.
What is DNA?
Deoxyribonucleic acid is the body’s blueprint present
in almost all the cells. DNA determines the function and structure
of every component in the body. Except for identical twins,
it is the slight differences in the combination of this DNA
that is inherited from our biological parents that makes us
unique. As our DNA is inherited half from our mother and half
from our father and it is this combination of dominant or
recessive traits that governs our height, hair colour and
even our susceptibility to disease.
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