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What happens to my information?

When your consent form and questionnaire are received they are given a unique identifier number. Using this unique number the information in your questionnaire is then entered into the master database. From this database our researchers are able only to access or transfer a copy of the relavent information they need for their particular study into an appropiate database for their study that your deidintified information will be involved in.

If you have donated a blood sample etc., this is also given the same identifier number and your name and date of birth or any other identifying information is removed from the sample. The blood is either frozen or the DNA is extracted and stored for use in the laboratory.

 


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